“To help CDH families find the best care, a supportive community, and a hope-filled future.” Our favorite feature of their website is “What to Ask Your Doctor?” (which can be found under “Resources”). They also have grants available to eligible applicants under “Let Us Help”

“The Fore Hadley Foundation provides hope, opportunity, and support to the Congenital Diaphragmatic Hernia (CDH) community, and serves to inspire others to join the fight to eliminate this birth defect.” They support CDH Research, award Scholarships to CDH survivors, and have financial grants available for new CDH families, linked below.

‘Families shouldn't have to choose between saving their child's life and financial stability. Our goal is to provide financial assistance for families having to relocate cities in order to provide the best care.” The only CDH charity that provides $500 in grants per family, per month, for at least 4 months upon acceptance.

“Our mission is to raise awareness while financially assisting and connecting with Congenital Diaphragmatic Hernia families in memory of Arianna Lugo.” Their grants assist CDH families to pay for travel, medical, lodging, or other expenses that may occur.

“We are dedicated to spread Congenital Diaphragmatic Hernia Awareness while helping to support CDH patients and their families.” They provide owlet smart socks which offers peace of mind for CDH families during the transition from hospital to home.

“The CDH Foundation will connect every CDH family with resources tailored to your needs. We will follow you, celebrate with you, mourn with you and everything in between.” Under “Events” you can also find information to join support groups, and they have financial grants available for ALL stages of CDH.