RESEARCH
Here we share research opportunities for CDH families, list organizations who contribute to CDH research, and proposed legislation for you to sign that could have direct impact on CDH patients.
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CDH International
“A global non-profit working to help over 6500 patient families in 74 countries through support services, raising awareness and funding and conducting CDH research.” Their boots-on-the-ground efforts are raising awareness and changing the outcomes for CDH across the globe.
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Research Study
This is an ongoing CDH research study available to all CDH patients and families.
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Petition for Standard of Care
Please take 30 SECONDS and sign the petition to establish a standard of care for CDH patients.